A Personal Appeal For Your Help

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Dear readers:

This is Rowan Wolf, editor of Cyrano’s Journal Today. I wish I could have avoided the necessity of writing you these lines, but at this point I am driven to ask you to help me. In simple terms, I am faced with the need to have a transplant or die.

In January 2010 I was struck down by what was thought were pulmonary emboli. This took me out of teaching for the rest of the year. My heart and lungs continued to fail, with each day leaving me weaker than the last until July. Then a new pulmonologist, Maxine Dexter, went over my case with a fine-toothed comb and determined that I actually had pulmonary arterial hypertension (PAH or PH). This is a rare condition that increases the pressures in the lungs making them unable to function properly. This puts tremendous strain on the heart, and has seriously damaged mine. PH is a progressive and irreversible disease.  My doctor started the long process of getting me evaluated for a heart-lung transplant, as this is the only cure for PH. Stanford Hospital has almost approved me and I will soon be on the transplant list. One of the hurdles in my path is being able to financially address the costs of transplant when I will be out of work for many months, and perhaps the rest of my life

I have been tremendously lucky to have insurance and a job that has allowed me to continue to work part time and blessed to have my partner Kelly and a very supportive family. However, my insurance is dependent on my employment and keeping that insurance. We have been unable to halt the progression of the PH, and I am losing ground and do not know how much longer I will be able to work. When that happens, I will bear the full cost of my oinsurance and the tremendous expense of pre-and post transplant.

The costs beyond transplant are large and some go on for the rest of one’s life. For example, I will have to go to Stanford at least once a year for follow-up care, and take anti-rejection medications costing in excess of $5000 a month for the rest of my life.  Even with my health insurance coverage, it is estimated that I may have over $50,000 in transplant related costs for the first year and over $10,000 for every year thereafter.

To help alleviate the financial burden of transplantation, a fundraising campaign has been established in my honor with National Transplant Assistance Fund (NTAF) for my uninsured medical expenses. NTAF is a nonprofit organization that has been providing assistance to the transplant community for more than 25 years. Your tax-deductible contribution is greatly appreciated.

Please make check payable to:                        NTAF Northwest Heart/Lung Transplant Fund

*Note in memo section:                                    In honor of Rowan Wolf

Send to:  NTAF

150 N. Radnor Chester Road, Suite F-120

Radnor, PA  19087

To use a credit card, please call 800-642-8399 or visit http://www.ntafund.org and enter Rowan Wolf in the “Find A Patient” box on the homepage.  Or go to my tribute page and select “Contribute Now.”

If you are unable to help financially but still wish to assist with my fundraising efforts, I’d be so appreciative.  Please pass on my information to others, or sponsor a fundraising event, or any creative idea you can come up with, please contact Rebecca Carr  (my NTAF support person)  rcarr@ntafund.org (800.642.8399 )  to see how you can help.

It is my hope that I will receive a transplant, heal and return to teaching and activism. I have been active in the environmental, animal rights, and social justice movements for most of my life and my goal is to continue my efforts to make this world a better place for all living creatures.

Kelly, and  our four legged ones (our three dogs and two adopted feral cats), and I are tremendously grateful for your positive thoughts, prayers, contributions, and help.

With kind regards and love,

Rowan Wolf   rowanstransplant@gmail.com

Contributions are tax-deductible to the extent allowed by law. This campaign is administered by the National Transplant Assistance Fund, a 501(c)(3) nonprofit providing fundraising assistance to transplant and catastrophic injury patients. Information: 800.642.8399

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