Dear Friends and Comrades,
I have returned home from Stanford and the next stage of recovery is here. I’ve been told that the first year after transplant is the most difficult, so the move home is a big one. I am ecstatic to be home even though there are certainly issues to deal with. The transplant component is doing well. The adjustments from the surgery and the anti-rejection drugs are proving more challenging.
It is a bit frustrating to deal with some of the hurtles of recovery. There is an expectation – my own and others – that everything is fine and I feel great. Unfortunately, I don’t feel great. I am tired a lot. I am having balance and neurological problems which affect things like walking and hand coordination. I am recovering from “pumphead” from the by-pass part of the surgery which affected my memory and some functioning. I don’t sleep well, and sometimes I am in pretty excruciating pain. On the other hand, I can breathe. My heart is starting to come around, and I am ALIVE to complain about not being at the top of my game.
I want to thank all of you for your continued healing thoughts and support. The emotional, physical, and financial challenges continue. I have been, and continue to be, humbled and deeply touched by the concern and love that has come my way. Thank you from the bottom of my heart.